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HC&U

Ben and Lindsey Massengale

HCandU is a podcast dedicated to the metabolic disorder, homocystinuria. This podcast is meant to be a resource for anyone who has (or is a caretaker of someone with) classical homocystinuria, a cobalamin disorder, or severe MTHFR as well as anyone who has been affected by any of the disorders under the homocystinuria umbrella. Topics to be discussed on the show include patient stories, research updates, recipes, and interviews with experts in the field of homocystinuria. Whether you or someone you know were just diagnosed or have been a patient for years, we hope you find this podcast helpful!

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Episodis

77 episodis

  1. HC&U: A Homocystinuria Podcast Bite Sized with Brittany Parke 12:46
  2. HC&U: A Homocystinuria Podcast with Claire Morton on Classical Homocystinuria 38:05
  3. HC&U Bite Sized with Dr. Hong Li 14:16
  4. Decentralized Clinical Trials: Travere's HARMONY and COMPOSE Studies (3/3) 23:31
  5. Decentralized Clinical Trials: The Nurse/Patient Experience (2/3) 18:26
  6. Episode 55 with Joseph Coughlin 26:42
  7. Decentralized Clinical Trials (1/3) 27:47
  8. Episode 54 with Brittany Hunter 32:28
  9. HC&U Bite Sized with Dr. Zohreh Talebizadeh 10:32
  10. Episode 53 with Patrick Lynch 23:30
  11. Clinical Trials Bonus Episode 3: Clinical Trials in Motion 1:08:25
  12. Clinical Trials Bonus Episode 2: Harmony Global Clinical Trials Live Q and A 16:26
  13. Clinical Trials Bonus Episode 1: Clinical Trials 101 59:25
  14. World Homocystinuria Awareness Day Panel 1:05:37
  15. Episode 52 with Brandon Tornes 25:29
  16. HC&U Bite Sized with Brittany Parke 10:02
  17. Episode 51 with Zamira Castaneda 37:32
  18. HC&U Bite Sized with Nicolo Betoni 6:14
  19. HC&U Bite Sized with Kristen Skvorak 4:21
  20. Episode 50 With Ruby Jean 34:28
  21. Episode 49 with Avery Volz 28:08
  22. Episode 48 with Amy Flanagan 39:22
  23. Episode 47 with Melanie Colter 42:41
  24. Episode 46 with Alicia and Miguel Gonzalez 40:05
  25. Episode 45 with Tiny and Tomas Devitos 29:28
  26. Episode 44 with Zara Bono 29:48
  27. Episode 43 with Liz Gonzalez 42:05
  28. Newborn Screening Bonus Episode 2025 47:35
  29. Adulting 101 Bonus Episode 1:05:55
  30. Episode 42 with Brittany Parke 47:00
  31. Episode 41 with Hannah Llewellyn-Jones 47:38
  32. Episode 40 with Rene van Oorschot 45:32
  33. Newborn Screening Bonus Episode 39:55
  34. Episode 39 with Michael Stevenson 41:45
  35. Bonus Episode 2025 WHAD Panel 1:07:26
  36. Episode 38 with Andreana Lanpouthakoun 19:41
  37. Episode 37 with Jessie and Trace Fordham 39:12
  38. Episode 36 with Dr. Curtis Coughlin 34:52
  39. Bonus Episode with Joy Brown 40:48
  40. Episode 35 with Yasenia Castro 33:30
  41. Episode 34 with Laurie Bonucci 36:42
  42. Episode 33 with Holly Fulginiti 48:05
  43. HCU Awareness Month Bonus Episode 28:01
  44. Episode 32 with Valerie Mayorga, Vicente Jimenez, and Victor Jimenez 43:43
  45. Newborn Screening Awareness Month Bonus Episode 14:07
  46. Episode 31 with Dylan Simon and Dr. Neena Champaigne 25:39
  47. Episode 30 with Dr. Stephanie Hitti 31:14
  48. Episode 29 with Brandon Tornes 38:30
  49. Episode 28 with Gabbi Lewis 30:23
  50. Episode 27 with Alex Orange Drink 35:58